Derek Elston, trustee of the ITP Support Association, talks to the PharmaTimes

Derek Elston, trustee of the ITP Support Association, tells PharmaTimes about his experiences of being diagnosed and living with the rare bleeding disorder

How were you diagnosed with idiopathic thrombocytopenic purpura and what were your symptoms?

I was first diagnosed in 1993 with ITP after working in the Far East for 14 months. At the end I was fairly shattered both with the intensity of the work and commuting regularly. After about four weeks, I decided to visit the doctor. He took a sample of blood.

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Stop the Bleeding

Last year many of you may recall that a group of rare disease stakeholders came together to form a Priority Setting Partnership (PSP) to find out what matters to patients, carers and clinicians in the field of Bleeding Disorders. Some people experience problems with bleeding throughout their lives as the result of an inherited disorder such as haemophilia or von Willebrand disease. Others may have long-term problems due to an acquired problem such as immune thrombocytopenia and finally some people may have experienced problems only after childbirth or surgery.  To this end the PSP launched a survey 12 months ago asking for people to consider which questions they think are the most important for researchers to be asking.

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BMA Foundation for Medical Research – grant winners 2017

BMA Foundation for Medical Research – grant winners 2017

Three of the UK's leading ITP specialists, have received grants from the BMA Jon Moulton Award to further their research into ITP. Dr Nichola Cooper, Dr Charlotte Bradbury and Dr Quentin Hill, all three directors of ITP Clinical Centres. Details of the award can be found via this link, BMA Foundation once on the page click on the J Moulton tab.