ITP Support Association - UK Convention - London 2020

The ITP Support Association is pleased to announce that 2020 UK ITP Convention will take place on Saturday 9th May 2020 at the Royal College of Pathologists, 6 Alie Street, London, E1 8QT. The ITP Support Association, formed in 1995 will be celebrating its Silver Jubilee in 2020, to mark this milestone our UK Convention will be held at the prestigious Royal College of Pathologists. We are now open for ticket bookings Read more...

New ITP Patient Resources from Novartis UK

Novartis UK have published an excellent page on their website containing some great #ITPPatientResources, a series of videos, details of the ITP Pocket Log and advice about the ITP Emotional Burden. The videos and ITP Pocket Log were developed in collaboration with the @ITPSupportAssoc To view the…
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Maesteg South Wales Local ITP Support Group

First meeting of the Maesteg South Wales Local ITP Support Group Monday 20th Jan saw the first meeting of the new Maesteg South Wales Local ITP Support Group, a lovely venue with some stunning scenery of the valleys. many thanks to Wendy Tucker for organising the venue. The next meeting in Wales…
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First Meeting of the Broomfield Hospital ITP Support Group

First Meeting of the Broomfield Hospital ITP Support Group A huge thankyou to Dr Pavel P Kotoucek and his team at the Broomfield Hospital, Chelmsford for making all who attended the first meeting of their ITP Local Support Group welcome. We would also like to thank friend of the ITP Support…
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Worcester ITP Support Group - First Meeting

Worcester ITP Support Group - First Meeting The first meeting of the new Worcester ITP Support Group took place on Fri 10th Jan. A big thank you to Jo Marlow. The next Worcester meeting will be in April (Date TBC shortly) Also thanks to Waitrose for making their Community Room available for the…
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Press Release - Grifols to launch TAVLESSE® in Europe and Turkey

Grifols to launch TAVLESSE® in Europe and Turkey to continue reinforcing its commercial strategy and commitment to patients European Commission has approved TAVLESSE® (fostamatinib) for the treatment of chronic immune thrombocytopenia (ITP) in adult patients who are refractory to other treatments.…
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INTERNATIONAL UPDATE for 2019

INTERNATIONAL UPDATE for 2019 By Derek Elston, Trustee, ITP Support Association The last twelve months have been extremely busy with the association being involved in representing ITP patients not only within the United Kingdom, but also within Europe and beyond. Whilst much of the involvement has…
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ITP AWARENESS - Looking forward to RARE DISEASE DAY 2020

ITP AWARENESS - Looking forward to RARE DISEASE DAY 2020 By Anthony Heard The annual ITP September Awareness Campaign has now come to a close after a wonderful purple tinged month. With contributions from all corners of the globe we have once again drawn attention to ITP in spectacular fashion. A…
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ITP Patient Research Evening - QE Hospital Birmingham 28th January 2020

Join us for a fascinating evening of short, patient-friendly talks on the latest research in ITP About this Event Do you, a friend, or a relative have immune thrombocytopaenia (ITP)? Join us for the third in our series of educational patient research evenings this time focusing on ITP caused by the…
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Update on the UK Adult ITP Registry

Update on the UK Adult ITP Registry by Haroon Miah, Research Coordinator / Data Manager at the Royal London Hospital In the last year we have added 19 new sites to the 74 hospitals that already report their new ITP patients to the Registry. This is 69% of the acute non-specialist Trusts in the UK…
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ITP Support Association - UK Convention - London 2020

The ITP Support Association is pleased to announce that 2020 UK ITP Convention will take place on Saturday 9th May 2020 at the Royal College of Pathologists, 6 Alie Street, London, E1 8QT. The ITP Support Association, formed in 1995 will be celebrating its Silver Jubilee in 2020, to mark this…
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ITP Local Group Meetings

ITP Support Association Local Group Meetings We have a number of Local ITP Group Meetings being held around the country. These local groups are an opportunity for ITP patients, their family and friends to meet in an informal setting giving them an opportunity to chat and talk about each other’s…
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Updated international consensus report on the investigation and management of primary immune thrombocytopenia

Updated international consensus report on the investigation and management of primary immune thrombocytopenia The international consensus report into treating ITP has been published. The full report can be read online by following this link ashpublications.org or you can download a PDF version here…
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