Following last year’s well-received ITP Convention in London, several members approached us with a request that we should consider holding a future event in the North West of the country? Therefore, we are pleased to announce that our 2018 Convention will take place at Chester Race Course on Sat 27th October from 10.00 am to 5.00 pm.
Last year many of you may recall that a group of rare disease stakeholders came together to form a Priority Setting Partnership (PSP) to find out what matters to patients, carers and clinicians in the field of Bleeding Disorders. Some people experience problems with bleeding throughout their lives as the result of an inherited disorder such as haemophilia or von Willebrand disease. Others may have long-term problems due to an acquired problem such as immune thrombocytopenia and finally some people may have experienced problems only after childbirth or surgery. To this end the PSP launched a survey 12 months ago asking for people to consider which questions they think are the most important for researchers to be asking. We are pleased to announce that following the initial survey, all the questions submitted have been collated and simplified and are now contained in a final survey which is live at www.stopthebleeding.org.uk
