During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the All Ireland ITP Patient Meeting was held on 10th January 2022. For details of further Patient meetings please visit our website at www.itpsupport.org.uk. You can download a copy of…

During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the Scotland ITP Patient Meeting was held on 14th December 2021. The expert was Dr Catherine Bagot. For details of further Patient meetings please visit our website at…

Covid-19 and the Omicron variant – an update The Omicron variant of the SARS-CoV-2 virus, which causes Covid-19 infection, was first detected in early November in South Africa and has now been identified world-wide. Although the numbers detected in the UK remain small they are rising fast, with…

Covid Vaccine and Children The guidance published by the UK ITP Forum is equally applicable to children as adults and can be found via this link – UK ITP Forum Vaccine Guidance. In brief we are strongly recommending COVID vaccination for children with ITP who are currently eligible. Platelet…

The December 2021 edition of the ITP Support Associations Platelet Journal is now available to download, this edition has a focus on our new shared decision making toolkit, 'Making the right choices in ITP management and care plus lots more. Printed copies for those who selected that option will be…

A Study to Evaluate the Efficacy and Safety of Efgartigimod PH20 Subcutaneous in Adult Patients with Primary Immune Thrombocytopenia (ADVANCE SC+) argenx BVBA is conducting a phase 3, multicentre, randomized, double-blinded, placebo-controlled trial to evaluate the efficacy and safety of…

We are conducting a new Study for those living with Immune Thrombocytopenia (ITP) and / or Paroxysmal Nocturnal Hemoglobinuria (PNH). The purpose of this research is to gain a deeper understanding of your experiences and journey with this condition.The method of this study will be: 1. 60 Minute Web…

ITP Patient Covid-19 Vaccine Survey - 2021 Our Covid-19 Vaccine Survey is still open, we have added some additional questions covering the Booster vaccine jab. We would also welcome any youngsters with ITP (18’s and below) who have had their vaccine to complete the survey. So far we have had over…

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 25th November with Prof. Adrian Newland Chair of the ITPSA, Mervyn Morgan CEO of the ITPSA, Rhonda Anderson Senior Patient Mentor and Board Members Derek Elston and Anthony Heard. You can download a…

'Making the right choices in ITP management and care' – A shared decision-making toolkit for patients. To download click this link: Making the right choices in ITP management and care Groundbreaking new toolkit launched to support patients with rare blood condition to take ownership of their care…

UK Adult ITP Registry – Update – September 2021 It has been another busy year for the UK adult ITP registry. The COVID-19 pandemic and lockdown restrictions meant that many of our ITP patients, clinicians and staff had to restrict their movement and stay or work from home throughout 2020 and into…

PROJECT LIVING WITH IMMUNE THROMBOCYTOPENIA (ITP) A Pharmaceutical client is looking for patients who have been diagnosed with immune thrombocytopenia (ITP) and would be willing to take part in a 60-minute 7-day online diary and a 60 minute interview on Microsoft teams. The purpose of the study is…

Join us as we celebrate Sport Purple for Platelets Day and Global ITP Awareness Week with the presentation of the ITP Insights webinar, “Living with ITP: Common Questions and Concerns,” on Friday, 24th September from 7:00 PM (BST). This webinar will include a panel discussion of ITP experts,…

“I wouldn’t have my children without plasma donors” says Manchester mum for Global ITP Awareness Week A MUM is calling for more people to donate plasma for Global ITP Awareness Week (September 20 to 24) after donors enabled her to have a family. Danielle Morley, 37, of Radcliffe, developed the…

In the context of the development of a novel self-injection device for the treatment of ITP, a global biopharmaceutical company is seeking patients diagnosed with Immune Thrombocytopenic Purpura (ITP) to be recruited for a simulated use (usability) study. The usability study will consist of…

Scotland ITP Patient Meeting August 2021 During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The August 2021 ITP Patient Meeting covered the Scotland Patient Support Group. This is a full recording of that meeting. The expert on hand were Dr. Catherine Bagot.

All Ireland ITP Support Group Meeting August 2021 During the Covid19 pandemic all our ITP Patient Group meetings have taken place on Zoom. This is an edited recording of the All Ireland ITP Patient Meeting which took place on 3rd August 2021. The expert answering questions is Dr Gerard Crotty. For…

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The July 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a full recording of that meeting. The expert at this meeting was Prof. Adrian…

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap NHS Blood and Transplant is today (Wednesday July 21) launching its first campaign for people to donate plasma for medicines. Donation only restarted in April after a gap of more than 20 years and few…

Yes, I know its only Summer but by popular demand our 2021 Christmas Card Collection is now available to purchase, each design comes in a pack of 10 cards, £3.50 per pack. All proceeds help the Association continue its work with ITP patients. Go to - Click here for the ITP Shop

ITP Patient Covid-19 Vaccine Survey - Updated Spring 2021 – Initial Findings (1) This paper reports on some initial findings from the ITP Support Association ITP Patient Covid-19 Vaccine Survey which was updated in February 2021. Did having the Covid-19 Vaccine have an effect on Platelet Counts?…

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered all the groups in England and Wales. The main subject of discussion was Covid-19 Vaccine and Blood Clotting. This is a full…

Scotland ITP Patient Meeting April 2021 During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered the Scotland Patient Support Group. The main subjects of discussion varied from Paediatric ITP to the Covid-19 Vaccine and…

We have also updated the answers to our most frequently asked questions (FAQs) regarding ITP and the Covid-19 vaccines. These can be downloaded here >>> There has been a steady stream of positive news regarding the trials and rollout of the various Covid-19 vaccines in recent weeks, this has also…

I would like to thank Novartis for making this storybook about immune thrombocytopenia (ITP). The book is endorsed in the United Kingdom by the ITP Support Association. I’m not a bubble-wrap boy! can help children and adults alike to understand what it feels like to live with ITP and describes the…

This meeting (All Ireland Support Group) was the 50th ITP Support Group meeting held by the ITP Support Association since we started these meetings in January 2019. We have come a long way since that first meeting held in a Church Hall in Devon, none of this would have been possible without the…

Rare Disease Day February 28th 2021 by Anthony Heard On February 2nd I was delighted to join a special Zoom meeting to preview the Rare Disease Day 2021 campaign. It was truly inspiring. The event this year will be bigger than ever and has numerous opportunities for us all to get involved. Even by…

Practical guidance for the management of adults with Immune Thrombocytopenia during the COVID-19 pandemic Updated January 2021 Pavord S, Thachil J, Hunt B, Murphy M, Lowe G, Laffan M, Makris M, Newland A, Provan D, Grainger J, Hill Q. This document aims to provide practical guidance for the…

Over the years the ITP Support Association has carried out many surveys covering the subject of ITP, this year we ran our Patient Perception Survey 2020, this was a follow up to a previous patient perception survey in 2017/18. With the Association establishing an ever growing range of local ITP…

The ITP Support Association - 25 Years in Pictures The ITP Support Association was founded in 1995 by Shirley Watson MBE, this video gives us a glimpse of the many people who have been involved with the organisation over the first 25 years. This video premiered at the opening of the ITP Support…

Introducing Jonny Mellor the New ITP Support Association Ambassador We would like to introduce our new ITP Support Association Ambassador, Olympic hopeful Jonny Mellor, who recently won the British Championships at the #LondonMarathon running 2:10:38. His story is an inspiration for everyone who…

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The January 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a recording of that meeting. The experts on hand were Prof. Adrian Newland and…