ennlfrdeitptes

Don't forget – SEPTEMBER IS ITP AWARENESS MONTH!

 

Please help our campaign to increase awareness of ITP

  • To increase awareness about the symptoms and to stress the importance of seeking medical advice and diagnostic tests for adults and children suffering from unexplained bruising and/or bleeding.
  • To increase awareness in schools so that parents of children with ITP bruising are not subjected to accusions or suspicion of physical abuse.  
  • To increase awareness amongst health professionals (GPs , paramedics, A&E staff, midwives, dentists etc) so that adults and children with ITP, or those who have lost their spleen through ITP, receive the appropriate medical care.
  • To increase public awareness through fundraising events to raise money for much needed ITP research which (unlike some better known diseases) receives no state funding. 
Read more ...

Are you seen at an ITP Clinical Centre? If yes please take the time to complete our survey


The ITP Support Association was instrumental in bringing together leading ITP clinicians in Sept 2011 for the purpose of establishing a network of recognised ITP centres of excellence around the UK. In the six years that have followed, many patients have requested referrals to these ITP Clinical Centres, and the Centre Directors are running a very active ITP Forum which coordinates their expertise to encourage better management, research and clinical trials. 

Read more ...

The ITP Shop is now online and open

The updated ITP Shop is now online with all your favourite fundraising items, Wristbands, Pens, even a Cuddly Toy.

All proceeds from sales goes to help the ITP Support Association continue its work supporting those affected by ITP.

Click here to visit the Online Shop

ITP Pocket Log

Many of you will use smart phones or tablet devices as part of everyday life so this item will be of interest.

At the recent ITP Convention at the Royal Society of Medicine in London there was a short presentation on a potentially exciting piece of technology called ‘ITP Pocket Log’. This application (App), which will be available on both IOS and Android will allow users to keep track of their ITP symptoms, test results, medications plus much more.

Read more ...

The 20th ITP Convention 2017

Royal Society of Medicine, London.

The 13th is considered by many to be an unlucky number so I am sure, some had misgivings about the date chosen for the annual convention for 2017. They need not have worried. The venue was exceptional, and the speakers, with the exception of one esteemed gastroenterologist, were all eminent haematologists from the UK, USA and Canada considered to be the whose who in ITP internationally. This year also proved to be the second most attended convention with an increase of over 50% on last year’s attendance. The total attendance was around 150 which was the full capacity of the Max Raine Lecture Theatre at the Royal Society of Medicine. Not only that, over half of the delegates attending were there for the first time to listen and learn. This I hope, they certainly did.

Read more ...

Join us

What are the benefits of membership?
Membership of the ITP Support Association mailing list brings you:

The Platelet, our quarterly journal, access to our 'ITP Friends' counselling volunteers, further information on living with ITP, treatment and the latest research, through our numerous free booklets and factsheets covering items such as insurance and Schools, a free ICH alert card in case of a bleeding emergency, access (through the Association) to our medical advisors for difficult conditions, concession ticket price for the annual ITP Support Association Conventions featuring visiting ITP specialists, and the opportunity to voice your opinion in occasional optional surveys to gather data on ITP (some from pharma agencies offer payment to participants).

Read more ...

About the ITP Support Association

Charity Registration No. 1064480

The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) by providing:Patient/parental/antenatal information and support

Read More

What does ITP stand for?

Immune Thrombocytopenia (An autoimmune disorder (Immune) causing a shortage of small cells in the blood known as platelets (Thrombocytopenic) Formerly known as Idiopathic (of unknown origin) Thrombocytopenic Purpura (bruising) .

Read more ...

Info for Patients

What is ITP
Immune thrombocytopenia (formerly known as idiopathic thrombocytopenic purpura) is a medical term for an autoimmune disorder (immune) causing a shortage of platelets (thrombocytopenia) and bruising (purpura).

Read More

ITP Research funded or supported by the Association

There is no state funding for ITP research, nor does The ITP Support Association receive any government funding, so it is entirely due to the generous donations and fundraising efforts of people with an interest in ITP that such valuable and much-needed research, as listed below, has been carried out.

New projects yet to start

In 2016 The Association agreed to fund the following projects:

Read more ...