Back in October 2017, Lexy Monks and friends ran in the Manchester 10km Rough Runner to raise money for the ITP Support Association (Lexy's Mum has ITP). The run coincided with Storm Brian hitting the UK, hence the rather muddy conditions in the photograph. Despite the weather Lexy and friends completed the course and smashed their fundraising target (£150) by raising an incredable £485.20. Well done Lexy and Friends.
The December edition of the Platelet is now available to download from the members area of the website, if you have not yet joined the ITP Support Association click here.
The December edition has all the usual favourites, latest fundraising heroes, news from the ITP office, the American Perspective, plus the latest ITP news.
To read this and previous editions of the Platelet go to the members area of the website.
The I-WISh Survey - Now Open
Do you have immune thrombocytopenia / idiopathic thrombocytopenia (ITP)?
Would you like to share your experience of this disease?
What are the benefits of membership? Membership of the ITP Support Association mailing list brings you:
The Platelet, our quarterly journal, access to our 'ITP Friends' counselling volunteers, further information on living with ITP, treatment and the latest research, through our numerous free booklets and factsheets covering items such as insurance and Schools, a free ICH alert card in case of a bleeding emergency, access (through the Association) to our medical advisors for difficult conditions, concession ticket price for the annual ITP Support Association Conventions featuring visiting ITP specialists, and the opportunity to voice your opinion in occasional optional surveys to gather data on ITP (some from pharma agencies offer payment to participants).
The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) by providing:Patient/parental/antenatal information and support
Immune Thrombocytopenia (An autoimmune disorder (Immune) causing a shortage of small cells in the blood known as platelets (Thrombocytopenic) Formerly known as Idiopathic (of unknown origin) Thrombocytopenic Purpura (bruising) .
What is ITP Immune thrombocytopenia (formerly known as idiopathic thrombocytopenic purpura) is a medical term for an autoimmune disorder (immune) causing a shortage of platelets (thrombocytopenia) and bruising (purpura).
ITP Research funded or supported by the Association
There is no state funding for ITP research, nor does The ITP Support Association receive any government funding, so it is entirely due to the generous donations and fundraising efforts of people with an interest in ITP that such valuable and much-needed research, as listed below, has been carried out.
New projects yet to start
In 2016 The Association agreed to fund the following projects: