|
About ITP
Childhood ITP
Teenage ITP
Adult ITP
Medical Advisors
Research into ITP
Events
Convention
Seminar
Send for:-
Publications
American Perspective
Downloads
Leaflets and more....
Search this site


How we spend your donations
|
 |
Webwatch
January 2008
Not long ago, we received an email from a man in the USA claiming that
there is a conspiracy to make treatments more and more expensive and hence
that the drug companies and doctors now attack alternative therapies as
they would reduce sales. The answer he received gave a more UK perspective,
that here we have the National Health Service where people are treated
free of charge, so for us at least, this conspiracy theory is seen to
fall down completely. This can easily be confirmed when one considers
the work of NICE, the National Institute of Clinical Excellence, www.nice.org.uk.
This is a body dedicated to making treatments better and, for the politicians,
cheaper. NICE is described as an "...independent organisation responsible
for providing national guidance on the promotion of good health and the
prevention and treatment of ill health" but hits the news in the
UK when specific drugs or treatments gain or fail to get approval on grounds
of cost. A high profile example being Herceptin for breast cancer. See
news.bbc.co.uk/1/hi/health/5058952.stm
or put Herceptin in the search box on www.nice.org.uk. It seems from this
side of the pond that more and more people in the US are seeing such conspiracies
and it is hard to comment, not being involved in US health policy, but
pro conspiracy sites such as www.quackpotwatch.org/ use language such
as "It is a propaganda enterprise, one part crackpot, two parts evil."
when referring to those who wish to expose quackery. The site author has
an interesting photograph of himself with a large warship in the background,
weapons of war being hard to associate with healthcare. It is easier to
associate such weapons with ideas such as where he says "The 'Quackbuster
Conspiracy' is in a desperate place now. They know they've lost the war,
and are going to pay a terrible price for their actions. The fear is in
their eyes..." on his site. Although the NHS is politically highly
sensitive, not even the hardest opponents to the NHS use the ideas of
war. Perhaps that is a US view that has little currency in the UK. Sites
that do not support this conspiracy view have been mentioned here before
such as www.quackwatch.org/. The best guide is to look for yourself, bearing
in mind the motivation and language used by the authors.
On a more humorous note but still with serious intent, it seems there
are those who will swear that certain events took place, even that cures
are effective, in the face of unambiguous evidence that shows otherwise.
A good example is when Patrick Moore, a famous astronomer, told people
that gravity would be reduced during a period when Pluto passed behind
Jupiter. He is a practical joker of world renown but some still reported
that they had indeed experienced a floating sensation in the relevant
period. See www.thefoolsday.com/bbc-hoaxes.html. Did they actually believe
it happened or is there some mechanism at work that makes people believe
against all possible evidence?
This class of behaviour has of course been studied. If someone believes
that a given substance or treatment worked for them or a friend, they
may well hold that view with some passion, but sadly that belief is of
no use to the population as a whole. It may be that the treatment was
not a factor in the recovery at all, it was simply undertaken before their
recovery and they got better for some other reason. The famous psychologist
B.F. Skinner researched just this kind of thing. As is described in some
detail on psychclassics.yorku.ca/Skinner/Pigeon/,
he experimented with pigeons as well as humans, but the birds illustrate
the point well. In numerous experiments, birds were rewarded with food
if they chose one of several possible actions. Skinner found they could
learn which action was required, but when he extended his experiments,
found that if food was delivered instead at random, the birds would associate
success with their action just before delivery, i.e. their action had
no effect on food delivery. By extension, if someone takes a treatment
then improves, they will believe firmly the treatment "worked".
Such a belief will not be shaken by lack of any other evidence.
In times past, such beliefs, or simply assigning events to specious causes,
could kill. In 1581, one Margaret Simons of Kent rebuked a young man for
chasing a dog whilst he was armed with a knife. (This puts modern news
into perspective!). The next day, the boy fell ill and she was accused
of witchcraft, it being thought she had made him ill. Luckily the jury
at her trial failed to establish her guilt, but others were not so lucky.
See entertainment.timesonline.co.uk/tol/arts_and_entertainment/books/article2835913.ece.
Even well into the next century, the famous self-appointed Witchfinder
General, Matthew Hopkins, was at work whilst the English Civil war was
raging across the land. There is more on www.bbc.co.uk/legacies/myths_legends/england/essex/.
In all, probably 200 witches were disposed of until he ceased his grizzly
work, all without one scrap of real evidence. Yet he was fuelled by "passionate
belief in the righteousness of his actions". I think I will rely
on evidence.
Happy surfing
Howard
Index to Webwatch
|