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ITP Research funded by the ITP Support Association
Since 2000 the ITP Support Association has been funding much needed research into ITP, as there is no state funding for this disease. The steady flow of donations from ITP sufferers, families and friends, in addition to general fundraising at the local level, and contributions from The Charity Shop in Great Yarmouth, has been not only heart warming and sometimes astonishing, but also inspiring because of the continuing sacrifice so many participants have made in their daily lives. Those of us who man the ITP Support Association are amazed that this small charity for a rare disorder has been able to finance so much valuable research. We could never express enough gratitude for the encouragement and willing dedication given by so many to achieve our targets. Your donation will help us to replenish our research fund so that we have the means to support the next worthwhile ITP research project that will help find the cause or cure for this frightening disease.
The ITP Support Association has recently awarded grants for four new groundbreaking research projects:
- £16,000 to Dr Angharad Care for a Prospective Study of Current UK Management of Severe Primary Immune Thrombocytopenia (ITP) in Pregnancy
- £60,000 to Dr James Crawley for Identification of novel pathogenic antiplatelet antibodies in ITP
- £9,000 to Dr Nichola Cooper for a Confocal bone marrow examination in ITP patients
- £18,500 to Dr Robert Stasi to investigate The role of bone marrow mesenchymal stromal cells in chronic ITP
Grants for ongoing projects include:
- £13,000 annually to support Dr. John Grainger's ITP Childhood Registry at the Manchester Children's Hospital.
- £68,900 to Prof. John Hunter to investigate Is Food Intolerance a factor causing ITP at Addenbrookes Hospital, Cambridge
Past grants awarded include:
- £5000 to Dr Bolton Maggs towards the study of newly diagnosed ITP children.
- £37,000 to Dr. Provan for a molecular analysis of ITP treatment predictors.
- £10,000 funding the pilot year of the Adult ITP Registry.
- £10,000 to fund the UK component of Professor Victor Blanchette's international Childhood ITP Quality of Life Study.
- £39,000 to sponsor a scientist working full time in ITP research and analysis at the Royal London Hospital.
In addition the Association has conducted three surveys of its membership
These surveys were funded by the ITP Support Association to assist the medical profession and pharma companies in understanding ITP from the patient point of view.
- 2000 investigating ITP and diagnosis
- 2007 investigating ITP lifestyle problems
- 2009 collecting data on fatigue in ITP
Your donations and fundraising will enable us to allocate even more money to research for 2014/15. We will be advertising for research studies to review in our competitive Grant Round which commences in October 2013, but we cannot fund ITP research without your continuing generosity. Please help us increase our research funding to find the cause, cure, or improved management of this rare autoimmune bleeding disorder.