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Why we normally supply one copy per order
Why they cannot be downloaded from the website
We value direct contact with ITP families rather than to supply documents for downloading or to be passed on by a third party. Also we prefer not to have publications either extracted or photocopied since all are regularly updated and old copies may not contain the very latest information. Most of the Association literature is printed 'in house', which allows for such revisions.
Contact between the Association and ITP sufferers is to our mutual advantage, not least because patients have the opportunity of joining our mailing list and using the services offered by the Association, which includes a comprehensive range of free publications. Contact allows us to collate important information on ITP from patients, facilitating feedback to doctors and drug companies and to pass on beneficial advice via The Platelet. We also rely on new contacts to give our 'Where to get help' and ITP registry leaflets (included in the initial info pack) to their own hospital and/or consultant for the benefit of other patients.
We depend on voluntary donations in order to fund the work of the Association: for example, spontaneous donations have enabled us to fund research into ITP and to sponsor a clinical specialist ITP nurse. Because of such donations we can function without an annual membership or subscription fee and the extra work this entails. No contributions are directed to administration charges. All Association workers are volunteers.