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Childhood ITP
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Medical Advisors to the ITP Support Association |
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Professor Sir John Lilleyman DSc, MD, FRCP, FRCPath, FRCPCH.
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'The ITP Support Association
has made a substantial difference to the lives of those afflicted
with this rare disorder (or rather these rare disorders, since there
are subtly different types). Treatment is often difficult to make
informed decisions about because the accumulated evidence for efficacy
is mostly based on different doctors' opinions rather than hard evidence
from carefully designed clinical trials, and doctors are notorious
for seeing only two ways of doing things - their way and the wrong
way. The Association has therefore developed into a unique, balanced
and sound source of advice and information, and families can trust
it to educate them and offer reassurance when things seem frightening.
It can do this on a personal basis or through its well established
publication, The Platelet.
Additionally it has begun to gather sufficient funds to support important research, from simple systematic collection of information about the frequency and outcome of ITP through to cutting edge analysis of gene variations that might relate to the chance of getting it or how those who do, respond to treatment. It thus plays an increasingly important role in advancing medical knowledge. Shirley Watson, as the founder, has assembled an impressive group of helpers and expert advisers, and the influence of the Association, unique in the World, stretches way beyond the United Kingdom. I am proud and delighted to be its Honorary President.' |
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Professor Adrian Newland MA FRCP FRCPath, CBE |
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Professor James George MD FACP (USA) Website |
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Dr. Drew Provan MD FRCP FRCPath Website |
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Dr John Grainger MBChB MD MRCP FRCPath Website |
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Dr. Paula Bolton-Maggs FRCPath FRCPCH FRCP |
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Professor George Buchanan MD FAAP (USA) Website |
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MBChB(Hons) BSc MRCP FRCPath PhD Consultant Haematologist, University Hospital Birmingham |  |
ITP Nurse Specialist at Barts and The London NHS Trust, Louise Taylor. You can contact Louise on louise.taylor@bartsandthelondon.nhs.uk |
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