Professor Sir John Lilleyman DSc, MD, FRCP, FRCPath, FRCPCH.
Honorary President
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'The ITP Support Association
has made a substantial difference to the lives of those afflicted
with this rare disorder (or rather these rare disorders, since there
are subtly different types). Treatment is often difficult to make
informed decisions about because the accumulated evidence for efficacy
is mostly based on different doctors' opinions rather than hard evidence
from carefully designed clinical trials, and doctors are notorious
for seeing only two ways of doing things - their way and the wrong
way. The Association has therefore developed into a unique, balanced
and sound source of advice and information, and families can trust
it to educate them and offer reassurance when things seem frightening.
It can do this on a personal basis or through its well established
publication, The Platelet.
Additionally it has begun to gather sufficient funds to support
important research, from simple systematic collection of information
about the frequency and outcome of ITP through to cutting edge analysis
of gene variations that might relate to the chance of getting it
or how those who do, respond to treatment. It thus plays an increasingly
important role in advancing medical knowledge.
Shirley Watson, as the founder, has assembled an impressive
group of helpers and expert advisers, and the influence of the Association,
unique in the World, stretches way beyond the United Kingdom. I
am proud and delighted to be its Honorary President.'
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